Cyclists of all abilities are invited to ride with our inspirational fundraiser, Carmela Chillery-Watson on their very own Wonder Wheels Cycling Challenge 100km around Wiltshire.…
Carmela, who has LMNA congenital muscular dystrophy, a very rare, progressive muscle-wasting condition which affects just one in a million children around the world, relentlessly continues to raise awareness and vital funds for the cause. She is, in short, the most inspiring person I’ve ever had the pleasure to meet, and has fast become an instantly loveable public figure through her sheer determination and drive to highlight the condition of muscular dystrophy.
The condition is likely, in time, to affect Carmela’s heart and lungs and is also very likely to be life-limiting. Some children with this condition do not survive their childhood or teenage years, while some, with the help of specialist intervention, live into adulthood. However, there is no cure; Carmela’s family is intent on raising funds to help further research into treatments and a cure, to help children affected, including Carmela, to enjoy a longer life.
It’s completely free to get involved in the Wonder Wheels Cycling Challenge, but Carmela asks you to try to raise at least £150 in sponsorship, this could help improve the efficiency of clinical trials, meaning they can reach more people and get results quicker.
If you’re thinking, whoa, Nellie, 100K is too much, there are other ways to Join Carmela’s Wonder Wheels Cycling Challenge. You can join in on the 2nd July by doing a 10k at Daunstey School, starting at 9am where they have a track suitable for bikes and wheelchairs.
You could also do your own 100Km, or 10km a day if the full distance is too much, at a more suitable date and route, any time in July and set up your own JustGiving page linked to Carmela’s Charity Research Fund.
To register for any of the options click here to sign up, this will take you through to a registration page so that you can support Carmela and research into LMNA congenital muscular dystrophy.
If you can, please join the Wonder Wheels Cycling Challenge, and make a real difference for children affected by LMNA congenital muscular dystrophy. If it all sounds far too energetic for you, I know, I hear you, there are other ways to support the cause.
Recently Carmela has set up a Muscular Dystrophy Buddy Bear campaign, where you can sponsor a teddy bear for a child with muscular dystrophy. Speaking from experience, Carmela explains how she was scared and crying at all the hospital appointments and tests, and first discovering she had muscular dystrophy, so Buddy Bear aims to provide comfort for younger children in a similar situation.
Registration is still open to sign up for Wiltshire Wonder Wheels, and closes on 1st June 2023. Entries for 100km across Wiltshire are closed but 100km and 10km around Dauntsey’s athletic track are still open: 250 laps for 100km or 25 laps for 10km. There is no age limit or restrictions on abilities, even wheelchairs and adapted bikes.
SIGN UP HERE
Sponsor a Buddy Bear HERE
For more information, join Carmela’s Facebook page HERE